So, tomorrow is her Kasai Procedure. This is our first step on the road to making sure Lyra has a life that is as normal and healthy as possible. There is a 30% chance that this will not work at all, a 30% chance that this will work and she will need a transplant before she is 2 and a 30% chance that she will need to have a transplant between 10-20 years of age. Without this procedure, Lyra will not live much longer. She already has significant scarring on her Liver and Cirrhosis, which will cause her to go into liver failure. About 85% of babies born with Biliary Atresia end up needing a transplant before they are 20.
Lyra is also on the borderline as far as age goes. Lyra will be 73 days (2 months 11 days, or 10 weeks) old tomorrow. This procedure works best on babies before 60 days and after 90 days, there is a higher chance that it wont work at all.
We are going from taking our baby girl to the doctor on Thursday for a cold, to finding out on Saturday that she has a life threatening rare illness, to open surgery on Tuesday.
To learn more about this procedure:
Please send all your good thoughts to Lyra tomorrow during this extremely scary time for all of us.
I'm a HAPPY GIRL!